Experiences with prophylactic cranial irradiation?...Just finished up chemo and radiation to chest and have an appt. with radiation doctor who will most likely suggest brain radiation but it scares me so...Reactions0reactionsComments1 replies
Lung nodules...Last month went again and now have 8 nodules , 1 of which was called a different name can’t remember but is 5mm . So what does all this...Reactions0reactionsComments6 replies
Have you experienced hearing loss from chemotherapy?...Hearing loss is a side effect from chemotherapy, but it can happen....Reactions0reactionsComments13 repliesTreatmentSymptoms
Everyday With Lung Cancer...I am Fighting and Praying and Thanking God everyday as I deal with this and when I finally grab a cup of coffee and turn the T.V. on, sit...Reactions0reactionsComments12 repliesCoping
ROS1 Mutation...It is a newer drug and quite a few serious side effects but is supposed to work well on ROS1. Any information would be appreciated....Reactions0reactionsComments6 replies
Numb From My Journey With Lung Cancer...I'm numb from it all, but I have a journey and I will get through it. I thank God, each day for life & for healing me from this....Reactions0reactionsComments2 repliesSurgeryCopingDiagnosisSupport
Staying Active...Sometimes people feel they can't make a difference in meeting their health goals with lung cancer, but staying active is a wonderful key in meeting lung...Reactions0reactionsComments3 repliesExerciseAdvocacyCoping
Planning ahead- E-SCLC...Mom’s only plan she os focused on right now is how to beat this thing, but we know she needs money for the war ahead and we hope to...Reactions0reactionsComments2 replies
In Memory of John...It has been two years but seems like yesterday....Reactions0reactionsComments2 repliesMemory Wall
Skin eruptions and blisters on hands and feet Kendra...Special Dermatologist at MSK is taking this on but we seem to be behind curve. Anyone with these side effects....Reactions0reactionsComments9 repliesSide Effects
Hello! Checking in....That doesn't mean it was easy but my docs had one fierce self advocate to work with....Reactions0reactionsComments4 replies
How do you wait for results without going out of your mind?...I do realize I am not the Drs only patient but in this business there needs to be more empathy....Reactions0reactionsComments1 replies
Handling Stigmas...Do you confront and set the record straight? Tips: -Encourage them to see the stats on those affected who were non-smokers....Reactions0reactionsComments36 repliesAwarenessCopingStigma/Judgment
Do you see bigger and fast growing tumors in a Bronchoskopy? ...But my symptoms since then have become worse. 2 weeks ago I had a Bronchoskopy. Can they miss a big or fast growing sclc in the Bronchoskopy?...Reactions0reactionsComments4 replies
My cancer...I am starting to do much better now, but it been a long and hard road to recovery....Reactions0reactionsComments5 repliesTreatmentCopingAwareness
Lung Cancer in Your 20's?!?...I was a 2 sport college athlete and continued with these endurance sports after college....Reactions0reactionsComments4 repliesDiagnosis
Understanding the Lingo...I have read some of the topics on it but don't understand the lingo used. what is VATS?...Reactions0reactionsComments6 repliesNewly Diagnosed
scared to death...But the CT scan says the following (what has me terrified is the irregular shaped nodules) - are they always cancer?...Reactions0reactionsComments2 repliesScans & Scanxiety
How to get involved?...I don't want to over extend, have Chemo every 3 weeks and it takes a week to recover, but want to do something bigger than just taking care of...Reactions0reactionsComments2 replies
Fatigue and pain...I had a VATS lobectomy of lower lobe in rt lung in 3/2017. ...Reactions0reactionsComments2 repliesCopingWeather