Storming The HillIn 2017, I went to the U.S capitol to “storm the hill”. Lung cancer alliance (now combined with the Bonnie Addario Foundation and called Go2 Foundation) hosted the event. I...reactions4comments
My 4th time with Lung CancerIn 2010 I had my lung cancer diagnosis and had my left lower lobe removed. No chemotherapy or radiation treatments. Boy, I was so lucky and happy. However, I was...reactionscomments
It's Easy To Get FrustratedI found myself getting frustrated with the pharmacy technician the other day. I am a somewhat quiet person but when it comes to my meds and things to do with...reactions4comments
My Family’s COVID ShotsAs a lung cancer patient, I am at a higher chance for a more severe impact of COVID-19 should I get sick. I am fortunate my targeted therapy does not...reactions3comments
What is GRASP?Recently, I participated in a relatively new program in conjunction with the American Society of Clinical Oncology (ASCO) annual meeting called GRASP. GRASP stands for Guiding Researchers and Advocates to...reactionscomments
Insurance ObstaclesWhen I was diagnosed with lung cancer, I never would have imagined all the health insurance details that I would come across. That would include keeping it, changing it, paying...reactionscomments
Accelerating Research for EGFR-Positive Lung CancerAs many of you know, I co-founded the patient group the EGFR Resisters in 2017 to improve outcomes for EGFR-positive lung cancer through support, education, and accelerating research. I’d like...reactions2comments
That Amazing Word...I heard that amazing word one more time. What is that word that you speak of? I am so glad that you asked. The amazing word is "STABLE". I had...reactions2comments
Melanoma Stage IV in 2012My melanoma had progressed to my brain, both lungs, liver, kidney, gallbladder, left adrenal gland, and spinal cord. Three Gamma Knife radiations to the brain, two craniotomies, and the first...reactionscomments
Cancer ScarsThere is a song from the nineties by the band Goo Goo dolls called “name”. In this song, there is a lyric, and it is “scars are souvenirs you never...reactions5comments
How to Find FriendsI started a self-grown journey in May 2021. I was diagnosed with stage 4 lung cancer six years ago. I gave a lot of thought to this self-development journey at...reactions2comments
My Family Ride With My Lung CancerThe first people who have taken a ride with me through my lung cancer journey are my family. They are the reason I am fighting my illness. With their love...reactions5comments
I'm NED, Now What?I am not a fan of abbreviations when used and not explained. If I am scrolling through a Facebook group and find a topic that I want to read and...reactions2comments
From Burnout to ReflectionI was experiencing burnout at the beginning of May. This is not the first burnout I experienced, but it was the first time I was diagnosed with lung cancer. It...reactions1comment
Grieving Those on the JourneyPart of living is unfortunately dying. Why so many are taken too soon is beyond me. Our lung cancer community has lost so many in recent days. Some of them...reactions4comments
Finding SolaceThough the last year and a half have been the pits for so many reasons, and COVID being one of them; somewhere deep within us all is a spark of...reactions2comments
How Will the Final Rule of the 21st Century Cures Act Impact You?The 21st Century Cures Act was passed in 2016 by Congress in order to “help accelerate medical product development and bring new innovations and advances to patients who need them...reactions5comments
Tough DecisionsAs an adult, we make tough decisions regularly. I feel that I have made quite a few since I was diagnosed with lung cancer. We all must make the decision...reactions3comments
A New Family MilestoneIn my marriage, there are many milestones my family chooses to celebrate. To name a few of these are wedding anniversary, Mother’s Day, Father’s Day, Thanksgiving Day, Christmas, Easter, birthdays...reactionscomments
Switching Treatments and Cancer ProgressionWhen I was diagnosed with lung cancer I had very little knowledge of the subject. I had participated in the Breath Deep Kankakee walk twice but anything to do with...reactions5comments
