World Cancer Day 2022: Closing the Care Gap...There are many barriers such as cost and disability that come with seeking cancer care? What are some barriers or challenges you have faced in accessing care for your cancer?...reactions3repliesAwareness
It Takes A Village: My Caregiving Team...I have been blessed with some amazing caregivers since I was diagnosed with lung cancer in 2014. A caregiver is a family member or paid helper who regularly looks after...reactionscomments
Supporting The White Ribbon Project...In October 2020, lung cancer patient and advocate Heidi Onda began getting frustrated with hospital administrators and marketing departments rejecting a campaign. Finally, she asked her husband, Pierre, an internist, to...reactions1comment
Movement of Stopping the Smoking Stigma...I have no experience in smoking, and I have known very few people smoking around me since my childhood. Therefore, when I started lung cancer advocacy three years ago, the...reactions6comments
Photodynamic Therapy (PDT) for Carcinoid Tumor...After speaking with a few doctors at Moffitt Cancer Center in Tampa, I've been recommended to have photodynamic therapy for my carcinoid tumor. It is in the bronchus intermedius, and...reactions2repliesTreatmentSide Effects
Living Well With Brain Metastases...Recently, I’ve talked to a few newly diagnosed patients with lung cancer who told me that although they were diagnosed at stage IV, they were relieved to learn that the...reactions8comments
Sleep...I have found that my sleep habits are off. Sometimes I’m up all day and seems all night before I can go to sleep. When I do go sleep, I...reactions9repliesSleepSupportSymptomsTips & Advice
When You Feel Ignored And Did Something About It!...This is the continuation of Juanita's article When You Feel Ignored! in which she talks about advocating for lung cancer awareness at work. So, I shared with you all about...reactions1comment
Lung Cancer Support...There are so many reasons why someone would seek out support from a support group. When I was diagnosed with lung cancer at an early age, I knew that I...reactionscomments
What to expect?...CT scan found a 2.2 cm mass in upper left lobe this past Friday (Jan 22). 1st visit with oncologist is this Tue (Jan 25). I found many wonderful resources...reactions8repliesNewly DiagnosedSupportTips & Advice
When Freedom is Stripped from You...Looking back at my life before lung cancer, it seems like I had so many more freedoms. While I realize that even on a cancer journey, I have the freedom...reactions3comments
I Wish For “CT Lung Cancer Screening For All"...I wish CT lung cancer screening was more inclusive for people who have no smoking history or risk factors. In other words, “CT lung screening for all.” Since my diagnosis...reactions7comments
Establishing Relationships...Establishing a relationship takes time, skill, and effort; so imagine the steps when you’re diagnosed with lung cancer (or any cancer)? How and what is the best practice to form...reactionscomments
Curious about our 5th Lung Cancer In America survey? ...Will you take the survey and help others understand the true impact of Lung Cancer? Learn how our survey helps elevate the voices of lung cancer patients. Together, our lung...reactionsrepliesAdvocacyResearch & Clinical Trials
Can Positivity Be Toxic?...There is a term that has popped up on the interwebs recently that has caught my attention. I am not sure how I feel about it 100% but it seems...reactionscomments
Getting Through The Holiday Season...Christmas has always been my favorite time of year. It is a time that takes me back to my childhood when my family was complete and I felt all of...reactions1comment
Four Year Cancerversary...Every year that clicks off on this journey calls for celebration. This celebration feels like an additional birthday. In a way, it is - a rebirth if you will on...reactions2comments
doing well...First of all I want to say that we were blessed to have a super pulmonologist. He wasted no time in the "we will watch it" routine. As soon as...reactions2repliesHealthcare Team
Another Side of Story of Clinical Trials...Although I truly believe that clinical trials offer prolonged lives, I always have some doubts about clinical trials. After all, it's an experimental study. I wrote an article posted on...reactions1comment
My Own Version Of Self Advocacy...As I am living with lung cancer, I have better days. Despite suffering from body reactions from my targeted therapy, life still must go on. There is no room to...reactionscomments
