Chasing Youth...When I tell someone I have stage 4 non-small cell lung cancer, the first question I'm hearing lately is, "But, you're too young". The conversation continues and I go on to...Reactions0reactionsComments0 comments
Basic Facts About the Lungs...If you are like most people, you didn’t give much thought to your lungs until you were diagnosed with lung cancer. I know I certainly didn’t! I knew that my...Reactions0reactionsComments0 comments
Stage 3 small cell...Has anybody had the treatment ciplatin and epotiside for stage 3 small cell...Reactions0reactionsComments9 repliesCopingEarly StageNewly Diagnosed
AACR Scientist Survivor Program: My Second Time Participating as an Advocate...I was honored to be selected to participate in the American Association for Cancer Research (AACR) Scientist Survivor Program (SSP) that took place April 9 – 13 in New Orleans...Reactions0reactionsComments2 comments
Raising Kids While Battling Lung Cancer...In November of 2014 when I was diagnosed with lung cancer my daughter was 17 years old and a senior in high school. My two boys were 19 and 20...Reactions0reactionsComments1 comments
Care Partner Observations...Many times it’s hard for a care partner to truly give their thoughts, especially when their loved ones are the ones going through the process of lung cancer. Sometimes you...Reactions0reactionsComments0 comments
A New Lung Cancer Book for Patients...Although I was an English major as an undergraduate in college (many years ago!), I never had my writing published until after I was diagnosed with lung cancer. Instead, I...Reactions0reactionsComments1 comments
Conversational Tools...Do you feel you have the right tools to discuss your lung cancer care? Does it feel too perplexing and frustrating? What do you do to regroup in getting your...Reactions0reactionsComments1 repliesAdvocacyCopingTips & Advice
My Short Bucket List...A bucket list is defined as a number of experiences or achievements that a person hopes to have or accomplish during their lifetime. When I was diagnosed with lung cancer...Reactions0reactionsComments0 comments
My Husband, My Awesome Caregiver!...When I was diagnosed my husband went in “I have to save my wife” mode. I remember my husband crying more than I when we were told I had lung...Reactions0reactionsComments1 comments
Do You Feel Like a Burden?...Feeling like a burden is so common to those with disabilities and pain. Just know that if you have this feeling, you are not alone. I've been living with stage 4...Reactions0reactionsComments2 comments
Advocating from Alaska (Part 2)...Read the first part of Kelly's story in Advocating from Alaska (Part 1). When the biopsy came back as positive for lung cancer, there were more tests, including an MRI...Reactions0reactionsComments1 comments
Advocating from Alaska...Through my advocacy work, I have the opportunity of making new friends in the lung cancer community and interact with so many wonderful people. I want to share with readers...Reactions0reactionsComments0 comments
Community Views: How Can People Support Us?...Receiving a cancer diagnosis is hard. All of a sudden, you have to shift your focus. Taking care of your health becomes the No. 1 priority if it was not...Reactions0reactionsComments3 comments
Let's Talk About Radiation Therapy Advances...Radiation therapy is one way to treat lung cancer. There have been a lot of advances in the field in recent years, so I wanted to share a few updates...Reactions0reactionsComments0 comments
My Experience with Tagrisso...When I was diagnosed with non-small cell lung cancer in 2014 my oncologist sent my tumor out for biomarker testing. I was learning all about lung cancer in those days...Reactions0reactionsComments0 comments
Tepotinibv, Met mutation...Hi, My name is Michal, my father has lung cancer - Met mutation. He started taking Tepotinibv. I am trying to learn about the side effects of Tepotinibv and learn...Reactions0reactionsComments1 repliesSupport
Journaling after Diagnosis...Have you found a hobby after diagnosis? I started a blog after I was diagnosed, and I have sporadically updated it ever since. I found that I wanted to do...Reactions0reactionsComments3 comments
My Experiences in Chemotherapy Ward...I’m a 7-year lung cancer survivor. I’m on targeted therapy, which has few side effects. I had chemo for four months when I was just diagnosed, but the chemo didn’t...Reactions0reactionsComments1 comments
follow up scans...My husband just had his six week follow up and scans. What does it mean when the doctor tells you there is no change in CT after twenty-five days of...Reactions0reactionsComments4 repliesCaregiving