Attending Events and Advocating for Lung Cancer PatientsAs a person living with lung cancer and doing advocacy work, I really enjoy going to lung cancer events, conferences, and summits...reactions1comment
Remembering Ivy ElkinsWe are profoundly heartbroken to share with the community that Health Leader Ivy Elkins passed away on June 23, 2024, at the...reactionscomments
Do You Still Get Nervous Before Every Scan?I had coffee recently with a close friend of mine and during our nearly three hour conversation that covered topics ranging from...reactions18comments
How Can Patients Drive Research?If someone had told me when I was first diagnosed back in 2013 that I would be helping to drive lung cancer...reactionscomments
I’m Alive Because of Recent Breakthroughs in Lung Cancer ResearchWhen I found out that I had EGFR positive lung cancer, I cried tears of joy. This discovery took place less than...reactions3comments
Pharmaceutical Companies Are Not Our EnemiesSince even before I was diagnosed with lung cancer, I’ve read comments on social media about pharmaceutical companies. There’s a perception out...reactionscomments
Experiencing Milestones That Might Be Taken for GrantedLast week, my husband and I celebrated our 22nd wedding anniversary. A 22nd anniversary may not seem like a big deal since...reactionscomments
You’re Lucky You Get to Travel So Much!I’ve been fortunate enough to do a lot of traveling in the over four years since I’ve been diagnosed with lung cancer...reactionscomments
To Biopsy or Not to Biopsy, That is the Question!I have had four biopsies since I was diagnosed with lung cancer in 2013. Why so many biopsies? Well, each one was...reactions2comments
Should Patient Advocates Attend the AACR Conference?In mid-April, I attended the annual meeting of the American Association of Cancer Research (AACR) for the second year in a row...reactionscomments
Fundraising Tips from a Reluctant FundraiserI have never enjoyed fundraising. When I was in school, I was the kid who always refused to go door-to-door with various...reactionscomments
What Are Specialty Pharmacies And Why Do We Use Them?Let me start by saying that I realize I am lucky to have medical insurance provided through my husband’s employer. There are...reactionscomments
Reflections on ASCOIn early June, I attended the annual meeting of the American Society of Clinical Oncology (ASCO) as a Patient Advocate. Held every...reactionscomments
Do I Think About Having Lung Cancer Every Day?A good friend of mine asked me a little while ago if I think about the fact that I have lung cancer...reactions12comments
Progress in Federal Funding for Lung CancerAt the end of June, a bipartisan amendment was passed to restore the budget for the Department of Defense (DOD) Lung Cancer...reactionscomments
Taking a Break from the “Rules”Since I’ve been diagnosed, I’ve been a very good rule follower. I’ve scheduled all my appointments including labs, CT scans, brain MRIs...reactions5comments
Attending SU2C with My Lung Cancer Sisters and BrothersI recently made a trip to Santa Monica, California for the live telecast of Stand Up to Cancer (SU2C). Along with my...reactions2comments
It’s Important to Pay Attention to Your Mental HealthI read a startling statistic the other day about suicide and lung cancer diagnoses. According to a public release by the American...reactions2comments
Big Focus on Patients at the World Conference on Lung Cancer!You would think there would be an emphasis on patients at all cancer conferences, wouldn’t you? After all, the end goal of...reactionscomments
Celebrating My Friend’s 15 Year Lung Cancerversary!I went to a party this past weekend. Not just a regular party, but a party to celebrate that my friend Terry...reactions3comments
