linfitness
"Wondering if lower dose of med helps reduce side effects"
I believe it does, but like everything, I think that it may vary by patient.
True. I’m particularly interested in how Ronda Beaty is doing but I cannot get a message to her
Ronda is on my personal FB page, I will private message her, unless you tried already ....
Yes please. I tried thru this site but it said wrong name
@linfitness and @thepurpleplace, I just heard back from her. A rough couple of months, but thinks she's on the mend. She just wrote an article and feels she is back in action! She appreciates our concern...
"Not great. Cough breathless. Cannot do much activity. Either side effects from immunotherapy or possibly treatment not working??"
Sorry to hear you're going through it. It's not easy maintaining a regimen with treatment; Hopefully , in time your body will react more positively. Please let us abreast on how you're doing. Best!
"I have tried all my docs recommended things - hydrocotisone cream, benedryl at night, Curel anti itch cream. I had immunology infusion a week ago and another week, next one. Does the itchy rash get better?"
@linfitness I am so sorry you are going through this. I personally don't have an answer for you, but maybe you can find something useful in some of our community articles. All the best!
Hi @linfitness - apologies for the delayed response. Of course symptoms / side effects can vary by person, including how long they last and when they may begin to improve - but it is good to hear you've spoken with your doctor about it - did you update them that nothing helped to see if maybe there's something else they may recommend to try? You may also find these articles with experiences from some advocates helpful: https://lungcancer.net/living/treating-many-shades-rash/ and https://lungcancer.net/living/immunotherapy-new-normal/ and https://lungcancer.net/q-and-a/rash/ - hope these may help. Do keep us updated! Thinking of you. Best, Margot, LungCancer.net Team
My P.A. prescribed something stronger than Benadry. It's helping - not just the rash, but I'm sleeping great! I feel better prepared to handle the next rounds of infusions - which is Opvido and Yervoy. Hoping side effects not too bad
"Itchy!!!"