An Update on Patient-Driven Research...Patient advocate Janet Freeman-Daily and I were invited to give a presentation recently at IASLC’s 2020 North American Conference on Lung Cancer (NACLC) about patient-driven research and why it is...Reactions0reactionsComments0 comments
In Memory of my Kelly Kayuk...Since diagnosis, I have been close to two different Kelly's. One I met at the very first Lungevity Event I went to, Kelly Kayuk. We could count on each other...Reactions0reactionsComments6 repliesMemory Wall
Lifestyle Changes and Screening...Im 59 years old. I was initially diagnosed with stage 2b. Grade 3, Poorly differentiated. During surgery, what was to be a pneumonectomy or lobectomy, turned wedge resection, I was...Reactions0reactionsComments11 comments
Diagnosed Aug 2018 Adenocarcinoma Lung Cancer with EGFR Mutation...My cancer journey began when I went to my primary care doctor because the medication he gave me for osteoporosis was causing me to have a nagging cough. He took...Reactions0reactionsComments2 comments
Surprising Side Effects Of Lung Cancer...Each person’s journey with lung cancer is challenging, no matter what side effects they experience. Some side effects, like fatigue, affect nearly everyone undergoing treatment. Others are less common and...Reactions0reactionsComments15 comments
Bless Your Heart, Spirit, and Oh Yeah Lungs...Though there are developments in how lung cancer is reviewed and treated, at times, I do feel it’s lower on the totem pole. A few weeks back my organization held...Reactions0reactionsComments2 comments
Advocate Spotlight: Patti...LungCancer.net shares the stories and experiences of people living with lung cancer. We are highlighting the story of our advocate Patti who was diagnosed with lung cancer in 2013 and...Reactions0reactionsComments3 comments
Who is, Alex Trebek?...And now, here is the host of Jeopardy...Alex Trebek! ‘It’s 7 o’clock, you girls are not going to watch Jeopardy?’ ‘We’re taping it to watch later mom, it’s not like...Reactions0reactionsComments2 comments
Family History...My dad passed away from lung cancer on May 4, 2001, he was just 57 years old. He was the youngest of 5 children. 4 boys and 1 girl. His...Reactions0reactionsComments4 comments
LCAM: What Does It Mean?...It comes every year. But what is Lung Cancer Awareness Month about? To me, Lung Cancer Awareness Month is a reason to pause and recognize the advances that have been...Reactions0reactionsComments4 comments
Advocate Spotlight: Ivy...LungCancer.net shares the stories and experiences of people living with lung cancer. We are highlighting the story of our advocate Ivy who learned about her stage IV lung cancer in...Reactions0reactionsComments0 comments
Community Spotlight: Jessi...After a surprising and shocking lung cancer diagnosis, Jessi was unsure what would come next. Her family and community stood by her through treatment unknowns and difficult decisions. Jessi’s Journey...Reactions0reactionsComments1 comments
My Lung Cancer Journey...November is Lung Cancer Awareness month and also my one-year anniversary as a Lung Cancer Survivor. Last Fall at #SupplySide West I knew I was sick, but I did not...Reactions0reactionsComments8 comments
Stage 4 Adenocarcinoma...I was diagnosed in November 2018. A small cancer diagnosis in my right lung and was inoperable. I was put on Keytruda and had 2 weeks of brain radiation because...Reactions0reactionsComments3 comments
Advocate Spotlight: Angie...LungCancer.net shares the stories and experiences of people living with lung cancer. We are highlighting the story of our advocate Angie who received her stage IV lung cancer diagnosis after...Reactions0reactionsComments1 comments
Beyond Exhaustion: How Life Changes with Fatigue...Fatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well. Fatigue can impact every aspect of daily life...Reactions0reactionsComments0 comments
Caring for my Mother In Law....About a year ago my mother in law was diagnosed with small cell lung cancer. She didn't let it get her down. I helped with transportation to and from her...Reactions0reactionsComments6 repliesCaregiving
A New Place and A New Attitude...By now, my family and I have been seriously socially distancing since mid-March. While I see others on Facebook taking vacations, eating in outdoor restaurants with groups of people, taking...Reactions0reactionsComments1 comments
Community Thoughts on Sleep Troubles...If you have lung cancer and are having trouble sleeping, know that you are not alone. The inability to get a good night’s sleep is incredibly common for people living...Reactions0reactionsComments1 comments
Lung Cancer After Bladder Cancer...I was diagnosed with Stage 1 bladder cancer in 2018. After initial surgery and then many BGC immunotherapy infusions and countless anxiety-provoking cystoscopies, I had a recurrence after 20 months...Reactions0reactionsComments3 comments
