Making Different Treatment Decisions...I was diagnosed with stage 4 lung cancer overnight and it came as a big surprise to me. I went into the emergency room for a stomach ache for cramps...reactions6comments
The Overwhelm of Multiple Doctors...I have been frequenting the doctor’s office this year. Not because of my cancer specifically, but because of other things. Earlier in the year, a cyst was found on my...reactions6comments
What's Next?...I put my younger son’s final class picture in a frame that I purchased when he started kindergarten. This picture frame has a spot for class pictures from every school...reactionscomments
Ask the Advocate!...Do you have a question about living with lung cancer that you would like to ask our team of advocates? Feel free to enter a question below! These can be...reactions21repliesAdvocacyAwarenessSupportSurvivorshipTips & Advice
A Letter to a Friend (And Reminder to Myself)...Coming out in public about my cancer diagnosis has allowed me to reconnect with distant family and friends from my past. Because I am very open about my journey and share...reactionscomments
Tepmetko (tepotinib)...Tepmetko (tepotinib) is used as a targeted treatment for adults with certain forms of non-small cell lung cancer (NSCLC) that has metastasized or spread from where it started in the...
Not Today Rona (Part 2)...Read the beginning of Samantha's story in Not Today Rona (Part 1). Suddenly, there was a shortage of toilet paper. After the first few cases of this incurable virus spread like...reactionscomments
I Tried to Donate Blood...When diagnosed with stage 4 lung cancer I was told patients cannot donate blood. The concern, if I understand it correctly, is that there are likely to be circulating tumor...reactions1comment
Personalized Medicine Requires Getting Personal...As Patch Adams said, “You treat a disease you win, you lose. You treat a person, I guarantee you, you’ll win no matter the outcome”. I can tell you firsthand...reactions2comments
Community Spotlight: Nancy...Nancy was diagnosed with lung cancer in 2013 and has since found support through various lung cancer communities. This is Nancy's story of perseverance and advocating for herself. I was...reactionscomments
Remembering Dustin "Screech" Diamond...On January 21, 2021, the public found out that former child star Dustin "Screech" Diamond was diagnosed with stage 4 small cell carcinoma as a never smoker. Three weeks later...reactions2comments
How to Deal with Advocacy "Fatigue" When Telling Patients’ Stories...On this lung cancer land, people often asked “Is it ok to share your story about lung cancer?”, especially when you want to be an advocate. We need to tell...reactions2comments
World Cancer Day 2021: What We Wish Others Knew...Over the years, we have had countless conversations in our community about what we wish people knew about life with cancer. We have talked about the things others so often...reactions2comments
Itch from treatment...I have had a terrible itch from my treatment for 4 years now have tried everything nothing seemed to work I have finally found something that works great tried last...reactions1replyTreatment
Not Today Rona (Part 1)...Well, 2020 has to be the craziest and worst year I've experienced in my life. And one day, I want to look back at this post when I'm upset and...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health Survey...Sometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...reactionscomments
Lung Cancer Advocacy Opportunities...Being a lung cancer advocate is very important, but it does not always look the same for everyone. An advocate is a person who publicly supports or recommends a particular...reactionscomments
Any success with Opdivo Yervoy combination for NSCLC?...Hi does anyone have first-hand experience of Opdivo(Nivolumab) + Yervoy(Ipilumumab)?...reactions2repliesTreatment
My Seven Year Cancerversary...I was diagnosed seven years ago, on December 26, 2013. In past years, I have celebrated my cancerversary with my family by taking trips to warm places during the last...reactions5comments
Fresh Air: A Place for Lung Cancer Support...There are so many lung cancer groups available to join in Facebook it can be overwhelming. When you are first diagnosed, it's like being dropped off in another country, and no...reactionscomments