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gramsie

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gramsie's Status Updates

  1. "A cloud seems to have lifted since my PET scan showed NED and my energy is improving! Every day is such a joy as I thank Our Father for his love when a take my Tarceva like it's communion. I look forward to each day, try not to think too far ahead. I've found an electric scooter to help get me around, so tomorrow I can go to the MN State Fair. That's really living! Thankfulness is what God teaches. Thankyou to all the researchers and "

    1. That is such wonderful news @gramsie! Thank you for sharing with us. Glad the energy is improving as well. Have so much fun at the fair!! Best, Margot, LungCancer.net Team

    2. Will do! Thanks

  2. "When people say How are you? My response is I'm happy to be here. Then I don't need to tell them how my body is not cooperating with my mind! When I can walk around without tipping over(like I feel I might), I'm doing well. Fatigue is frustrating as I've always had super energy and could go all day without stopping. Now with Stage 4, metastatic to spine, I tire so quickly! Most people tell me I look good, I tell them I look better than I feel! Just truly enjoying every single day-rain or shine-I'm still here. I thank God reverently each morning as I take Tarceva. Thanks for scientific ability to develop this pill-despite side effects and price "

    1. Thinking of you @gramsie thank you so much for being a part of the community and sharing with us - so glad you're finding ways to enjoy each day despite these difficulties and frustrations! Please keep us updated with how you are feeling if you'd like to - we're here for you and thinking of you! Best, Margot, LungCancer.net Team