Lung cancer stage 4 with BRAF v600 mutation

Does anybody have this variation of lung cancer. Or have a family in a similar situation? It’s very rare and I’m 16 months post diagnosis taking targeted therapy for past 14 months. Pills have held cancer growth stable until now. Trying to find a fellow person in similar situation but when only 2-4% world population have this rare condition it has proven almost impossible. I am a 59 year old mother/grandmother, full time teacher and was living a normal life in Gibraltar a small British overseas country (near Spain) until recently. I’m a Non smoker and fit and healthy until I started a croaky voice 16 months ago leading to where we are today. I have been on a couple of UK forums but no response to discussion. My oncologist and team suggested a wider platform. Decided to try a world wide option due to rare mutation, thank you for taking out of your day to read this.