Perceptions of Palliative CareDo you know what palliative care is? According to the Center to Advance Palliative Care (CAPC), “Palliative care is specialized medical care...reactions1comment
Spotlight: Jim and Kristina BurkeRecently, Kristina Burke reached out to me through our EGFR Resisters website. She told me that her husband Jim was diagnosed with...reactionscomments
Do We Need a New Model for Lung Cancer Screening?In the lung cancer community, the percentage of patients who are diagnosed with lung cancer, but have never smoked has been growing...reactions2comments
Still Living with UncertaintyThis past February 13th marked one year since having an upper right lobectomy that resulted in me reaching NED (No Evidence of...reactions4comments
Fully Vaccinated: Now What?I was fortunate to have been able to receive two doses of the Moderna COVID vaccine in February. I had just a...reactionscomments
Long-Term Side Effects?It’s tough getting older, but definitely better than the alternative! While I am incredibly grateful for the advances in research that are...reactions6comments
Reaching Some New MilestonesMay 2021 has been quite a busy month for my family! Not only did my younger son graduate from high school, but...reactions2comments
How Will the Final Rule of the 21st Century Cures Act Impact You?The 21st Century Cures Act was passed in 2016 by Congress in order to “help accelerate medical product development and bring new...reactions5comments
Accelerating Research for EGFR-Positive Lung CancerAs many of you know, I co-founded the patient group the EGFR Resisters in 2017 to improve outcomes for EGFR-positive lung cancer...reactions2comments
What is GRASP?Recently, I participated in a relatively new program in conjunction with the American Society of Clinical Oncology (ASCO) annual meeting called GRASP...reactionscomments
Understanding the Role of Healthcare Utilization Management OrganizationsYou may not be familiar with the term healthcare utilization management but chances are, it plays an important role in decisions about...reactions3comments
Attending a White Ribbon Build PartyOne of my fellow contributors wrote an article several months back about the launching of the White Ribbon Project by Heidi and...reactions3comments
Resilience from Living with Lung CancerEver since I was diagnosed so unexpectedly with lung cancer, I’ve found that not much shocks me or truly surprises me anymore...reactions2comments
NestingI recently spoke on the phone to a good friend of mine who was about to have surgery. She told me that...reactions2comments
Starting to (Maybe) Get Back to “Normal”Beginning in October, I have several advocacy events on my calendar that are scheduled to take place live! A few are local...reactionscomments
Attending the ASTRO Annual MeetingIn late October, I attended the annual meeting of the American Society for Radiation Oncology (ASTRO), held live in a convention center...reactionscomments
Highs and Lows of the Holiday SeasonThe time of the year between Thanksgiving and New Year’s always brings about a lot of conflicting emotions for me. While it’s...reactions3comments
Vaccinated, Boostered, and COVID Positive!I’m fully vaccinated and boostered — am I safe from COVID? I thought the answer was yes until recently. Even though the...reactionscomments
What Does “Patient-Centricity” Mean?You may have seen articles and posts in the lung cancer community lately referring to the need for “patient-centricity”. “Patient-centricity” has become...reactions2comments
Living Well With Brain MetastasesRecently, I’ve talked to a few newly diagnosed patients with lung cancer who told me that although they were diagnosed at stage...reactions8comments
