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What do you wish other people knew about lung cancer?

November is Lung Cancer Awareness Month. We would like to start an open and honest conversation about the realities of living with lung cancer as a patient or a caregiver.

In this thread, we invite you to share your perspective. What are the myths, struggles, or surprising realities of lung cancer that you wish the public truly understood?

  1. Im a 4x lung cancer warrior currently stage4 my journey started 18 years ago with lung cancer.first its not an automatic death sentence! And even though I smoked,not all lung cancers are caused by smoking!!! There are many new improved treatments out there, do your research and get tested .Early detection is key! Along with a positive attitude great support system and faith 🙏 🤍

    1. , I'm so glad that you joined the conversation. Eighteen years is amazing, and inspires hope! Do you find it's important that your team is open to the research you are doing, and integrating it into your treatment plan? - Warmly, Donna (Team Member)

  2. It's very important,however some Dr.s don't like it when we advocate for ourselves . I THINK HAVING THE RIGHT DR.S TEAM MAKES A HUGE DIFFERENCE IN YOUR OUTCOME

    1. I agree 100%. Have you ever changed a member(s) of your team when you felt they were not collaborative? - Warmly, Donna (Team Member)

  3. I sure have! Both with oncologist and recently with this port infection infectious disease teams 2 lol

    1. , I am glad that you advocated for yourself! It can be a difficult choice, and we can sometimes do a great job of talking ourselves out of it. Did you have any guilt when deciding to make the move and if so, how did you overcome that? - Warmly, Donna (Team Member)

    2. not abit the attitudes and complete disregard for my input made it easy. Best wishes I continue to fight

  4. I was stage 4 in 2022 with more metastisis than you can shake a stick at. Had a collapsed lung during the biopsy, then about 4 infusions of chemo and about 40 of Keytruda.
    Yet, here I am, living proof that you can survive this disease.
    Best wishes to all.

    1. Thanks for sharing your personal experience with metastasis and treatment. I am encouraged by your story and the message that you can survive this disease! This brings hope to many. Sending well wishes your way today!
      -Sarah (LungCancer.net Team Member)

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