A New Place and A New AttitudeBy now, my family and I have been seriously socially distancing since mid-March. While I see others on Facebook taking vacations, eating...reactions1comment
Advocate Spotlight: IvyLungCancer.net shares the stories and experiences of people living with lung cancer. We are highlighting the story of our advocate Ivy who...reactionscomments
An Update on Patient-Driven ResearchPatient advocate Janet Freeman-Daily and I were invited to give a presentation recently at IASLC’s 2020 North American Conference on Lung Cancer...reactionscomments
What is Survivor Guilt?According to the New Oxford American Dictionary, survivor guilt is defined as “a condition of persistent mental and emotional stress experienced by...reactions2comments
Are You Ready for a COVID-19 Vaccine?I certainly am! I plan to get a COVID-19 vaccine as soon as I am allowed given the State of Illinois guidelines...reactions1comment
My Seven Year CancerversaryI was diagnosed seven years ago, on December 26, 2013. In past years, I have celebrated my cancerversary with my family by...reactions5comments
What's Next?I put my younger son’s final class picture in a frame that I purchased when he started kindergarten. This picture frame has...reactionscomments
Lung Cancer is NOT an Automatic Death SentenceRecently, a woman in an online parenting group that I belong to announced that she had been diagnosed with stage IV lung...reactionscomments
Back to College in COVID TimesMy family and I just came back from a 3-day, 2-night trip to New Jersey. It was the first time in almost...reactionscomments
Accomplishment and LossMy initial plan for this article was to write about a recent accomplishment of the EGFR Resisters Lung Cancer Patient group: namely...reactions3comments
Perceptions of Palliative CareDo you know what palliative care is? According to the Center to Advance Palliative Care (CAPC), “Palliative care is specialized medical care...reactions1comment
Spotlight: Jim and Kristina BurkeRecently, Kristina Burke reached out to me through our EGFR Resisters website. She told me that her husband Jim was diagnosed with...reactionscomments
Do We Need a New Model for Lung Cancer Screening?In the lung cancer community, the percentage of patients who are diagnosed with lung cancer, but have never smoked has been growing...reactions2comments
Still Living with UncertaintyThis past February 13th marked one year since having an upper right lobectomy that resulted in me reaching NED (No Evidence of...reactions4comments
Fully Vaccinated: Now What?I was fortunate to have been able to receive two doses of the Moderna COVID vaccine in February. I had just a...reactionscomments
Long-Term Side Effects?It’s tough getting older, but definitely better than the alternative! While I am incredibly grateful for the advances in research that are...reactions6comments
Reaching Some New MilestonesMay 2021 has been quite a busy month for my family! Not only did my younger son graduate from high school, but...reactions2comments
How Will the Final Rule of the 21st Century Cures Act Impact You?The 21st Century Cures Act was passed in 2016 by Congress in order to “help accelerate medical product development and bring new...reactions5comments
Accelerating Research for EGFR-Positive Lung CancerAs many of you know, I co-founded the patient group the EGFR Resisters in 2017 to improve outcomes for EGFR-positive lung cancer...reactions2comments
What is GRASP?Recently, I participated in a relatively new program in conjunction with the American Society of Clinical Oncology (ASCO) annual meeting called GRASP...reactionscomments
