Anyone with Lungs

When I was diagnosed with stage 3b non-small cell lung cancer in 2014 I had just turned 30 the prior September. I had a lot of thoughts running through my head and the most prominent one was “why me”. I think we all stumble upon this question in some form or another after a diagnosis of this caliber. I could not fathom the idea that I, an otherwise healthy young adult that went to the gym a few days a week and ate in moderation, would be diagnosed with lung cancer.

Finding purpose in my lung cancer diagnosis

I remember my dad’s reaction to my diagnosis as something that I had never seen from him before. My dad does not show a lot of emotion and he uses very colorful language to get his point across most of the time. But at this moment I had seen him scared and trying to (along with all of us) figure out why his daughter and not him was diagnosed with lung cancer. Like a lot of people out there his thought process pointed to the idea that he had a smoking history, not his 30-year-old daughter. He told me that there was a reason that I was diagnosed and that was so that I could help others.

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I did not jump into any sort of lung cancer advocacy right away. I needed to process some information and feelings on my own before I could even think about helping others. Advocacy can be so many different things. I started out by attending conferences, my first was to Hope Summit hosted by Lungevity Foundation in 2015. In hindsight, I was very ill and should not have been leaving my house let alone traveling to Washington, DC. But I made the trip along with my sister. I remember it so well and I met so many new people who were also going through a lung cancer diagnosis. I met some of the people who would end up being the first people that I would have to experience the loss of.

Gaining valuable experiences living with cancer

Over the years I have gained some valuable experiences. I have had multiple treatments and multiple types of treatments. I have participated in two clinical trials, one local and one halfway across the country. As I mentioned earlier in this post, I was diagnosed young. I have encountered too many losses, many gone too soon. All of this has shaped the lung cancer advocate that I am today.

I participate in as many focus groups as I can. They have ranged from talking about how I felt about lung cancer, and how I managed through two clinical trials, to participating in a process to get more funding.

I also participate in one-on-one advocacy. I am a phone buddy for multiple organizations, and I have seen firsthand how speaking with someone close in age that is also going through lung cancer has benefited the newly diagnosed. I have always said that I am a phone buddy because I want to be the person that I needed when I was diagnosed.

I share the information that I have gathered in the best way that I know-how. I participate in Facebook groups that are catered to lung cancer. I am an active participant in the Lung Cancer Reddit community.

No matter what...cancer is hard

Cancer is hard to go through at any age. Each one of us can tell a story about all that we have been through. I am happy to be able to support the newly diagnosed, to share my experiences as a young adult with a disease very rarely found in someone my age, and scream from the rooftops “anyone with lungs can get lung cancer!”

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The LungCancer.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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