abbyschmidt
Where are you along the diagnosis spectrum?
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Hopeful1 Member
Lung Mets
Hopeful1 Member
Newly formed lung mets have increased in size. Chemo to start soon🤔
JillBrodie Community Admin
Mamalena Member
nerdgirl3000 Member
I was just diagnosed yesterday--they're not yet sure of the stage--it will either be 1 or 2.
I had a robotic bronch/biopsy and PET/CT last week. Biopsy showed "atypical" in the nodule, "Atypical" in one set of lymph nodes and "suspicious of malgnancy" from the BAL.
PET/CT tentatively (the doc read the results before they were formerly uploaded to the system) should no cancer.
They're doing a SECOND robotic bronch/biopsy for the lymph nodes to hopefully hopefully hopefully rule out lymph activity, I will be doing a VAT surgery (minimally invasive to remove the nodule and do a resection) probably within the next few weeks and they're setting up an appointment with an oncologist. I was told that *probably* it would be immunotherapy if it's stage 2.
I'm devastated. Freaking out. All of it. I have no family (meaning just two 2nd cousins, one who is bipolar and mentally challenged and the other, very very sick). I have a few very close friends who will be there for me but it's VERY hard to go through this without real family and, living alone. And asking favors from friends. (One had said she'd go with me to the hospital and last night, after I got my "suspicious of malignancy" results called and asked if she could go with me to the surgery--she lives in my neighborhood and she said, "Well, I'm doing a fun creative writing project and don't know if I can spare the time." I literally burst into tears cause I felt SO alone and told her, "Don't worry about it. There's a freelance trainer in my building I know and I can probably pay her to go with me." Because everyone else I know is working and I can't go to surgery alone. I think she felt like a total heel and she apologized and apologized and said she'd be there for me. But, who knows. So I'm going to get the trainer as a backup). People REALLY show you who they are when the chips are down.
I'm going to get a cat sitter for when I'm in the hospital and am freaking out about that (my two cats and I haven't been apart since I got them 5 years ago) and am freaking out about the possible/maybe probably lymph node involvement.
Is there anyone here who is stage 2 who has positive stories about beating it and getting/staying well? All good news stories are appreciated.
Mamalena Member
nerdgirl3000 Member
nerdgirl3000 Member
Thank you so much for the links and strength! And, I just got the results of my Pet scan and they want, in addition to everything else, a cervical lymph node biopsy.
JillBrodie Community Admin
nerdgirl3000 Member