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Lung Cancer Journey

Hi … In April 2016 I was diagnosed with a mass in my right lower lobe of my lung … I was seeing my family doc since 2012 … He told me I had COPD… He never sent me for testing … I changed family doctors because in the fall I would get bronchitis … In May I had surgery and they removed my lower lobe of my lung .. The mass was about the size of a baseball .. They also removed a lot of lymph nodes … In June they started chemo 3 days a week and on the fourth day I got a neulasta shot … My chemo ended in August but it did not work for me …it spread to my liver … They did a chemo embolization to my liver and the next day they went in and burned the tumor … They started me on Opdivo … It worked ..I am cancer free … I did get to nasty side effects …acquired ulcerative colitis which is horrible … And it also threw my thyroid off .. I have lost lots of weight because of the colitis .. My GI doc told me it will probably not go away … I wouldn’t wish it on my worst enemy … There are so many foods I can’t eat … Get fatigue a lot and nausea .. If I get a colon flare up I end up in the hospital for days … But I have to say I am very happy I am cancer free …

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Comments

  • Illini
    1 year ago

    Oh wow. You’ve been through a lot! So glad to hear “cancer free”….mine won’t let me call it that till after 5 yrs of good CT’s. I was like you, never got tested by gp…and I asked him if I had copd, and then he diagnosed me with it. (2014) Found mine by coughing up blood. But mine never spread like yours. So great to hear your news. Congratulations and hope you start feeling better. It took me over a year to start feeling better…hoping you start feeling better this year!

  • Sara Hayes moderator
    2 years ago

    Hi @shrdno2

    I’m so glad to hear you’re cancer free!!! What incredible news! I know it hasn’t been an easy road. I hope you’re fatigue and nausea have been getting better. We have some articles about these topics that may be helpful, if you’re interested: https://lungcancer.net/living/tips-for-managing-cancer-fatigue/ and https://lungcancer.net/living/help-fatigue-nausea/. It must be so tough to have the ulcerative colitis diagnosis on top of everything else you’re dealing with! We have a sister site for people affected by ulcerative colitis and Crohn’s disease (https://crohnsdisease.com/) if you need support for those symptoms. Please know we’re here for you and we’re celebrating you being cancer free!!! Check back and let us know how you’re doing!

    Wishing you all the best, Sara (LungCancer.net team member)

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