How have you made treatment decisions?
Do you work with your healthcare team to make decisions about lung cancer treatment? How have you decided on treatments? Any tips?
Yes, I have a wonderful medical care team, took me years to put together, and we make decisions together. I learn about different treatments and advancements from various lung cancer newsletters and summits (in person pre-covid and now virtually) and bring information on treatments that I think might be a fit for me down the line if needed. I feel comforted knowing I have a Plan B, C, D, etc. I get scanned every six months and hope to never need to pull out my "in case of" file, but good to know I have one!
Alisa, you are a truly educated patient and your medical team is up to date. I hope all of the patients and their medical teams can be like yours, but... That's why I think for us, to be educated patients are ulmost important because the doctors, if not specialized in lung cancer, can not keep up with the pace. We have to be educated including getting in touch with researchers/doctors on our specific lung cancer from outside.
Absolutely! When I was diagnosed we had to rely on going to medical libaries, it is so much easier to be one's own advocate now. The world opened up with the World Wibe Web!
