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How can I connect with someone that has a similar diagnosis as me?

Stage IV NSCLC Adenocarcinoma with no mutations PD-L1 90%

  1. Hi , may I ask if you are on immunotherapy treatment? That would help steer you in the right direction, I know of online support groups for those going through immunotherapy. Best, Alisa

    1. Here are two facebook support groups you may want to join:

      LUNGevity Immunotherapy Group
      Immunotherapy Support Group

      Please feel free to follow up with us and let us know how you are doing. All the best, Alisa

  2. I have that diagnosis as well. No mutations don’t know about PDL. I am in a clinical trial —. After stereotactic radiation I now get immunotherapy infusions every 2 weeks. First scans coming up in a couple of weeks. Fingers crossed for good news

    1. Yes, I am on Keytruda, carboplatin and Alimta. I also received a 10 day radiation cycle for bone mets in sacrum bone and then another 10 day radiation cycle for bone mets in rib.

      1. Prayers for you linfitness I hope the scans come back with positive responses.

        1. Thank you. I will be following up after scans. When were you diagnosed? I was diagnosed in May after months of tests and anxiety Anxiety level definitely up now while waiting for scans.

        2. I was diagnosed in April 2019. It was an accidental finding on a CT scan after an emergency appendectomy. I didn’t have any symptoms at all. Talk to your primary care physician about you anxiety. They can help you.

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