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An Open Letter to Caregivers

Dear Caregiver,

I was diagnosed with stage IV lung cancer back in October 2012. While I am feeling quite well most of the time now, we went through a period of time when it was far more touch and go. I thought it might be helpful for you to hear from me, as a patient.

In lots of ways, I doubt my husband and I have experienced the same frustrations as many of you have. I have been mostly healthy, despite my dire diagnosis. So, I may not answer many of your questions with this missive, but I hope I address at least a few.

What you are going through is hard

First of all, in my opinion, what you are going through as the caregiver is far more difficult than what I am facing. You have to worry about taking the best care possible of your loved one, which very often leads to extreme exhaustion. You are most likely more concerned about your loved one with cancer than you are about yourself. That’s dangerous.

Please, take care of yourself. It is vitally important that you don’t get sick. Exhaustion, stress, fear – these emotions can take a real toll on your health.

Please take care of yourself

It won’t hurt your loved one for you to go to a movie or out to eat with friends. You need to be able to just get away from cancer for a little while. I guess some patients might resent you taking time away from them, but most would encourage it, especially if they are feeling well enough to be alone. Or, do what some others I have read about do – get an aide or friend or family member to come sit with your patient for a few hours or even for a weekend away.

Our lives have changed in unexpected ways

The one thing I read about most is the guilt faced by caregivers. You feel guilty that you have to go to work, that you worry about what life is going to be like if your loved one dies, how you are going to survive financially. My friend, these are very legitimate concerns and you would not be normal if you didn’t worry about them. Feeling guilty for thinking about them just adds to your burden.

Speaking of guilt, don’t feel guilty for sometimes resenting your loved one either. In the end, it isn’t them that you are resenting, it is this stupid disease that has changed your lives in ways no one ever expected.

If you’ve been caregiving for a long time, you could be getting caregiver fatigue. It might seem like it will never end. Of course, you feel guilty for daring to think that way, but once more, you are human and those are human emotions!

You don’t always need to ‘put on a happy face’

I read some wise advice recently. A person who had cared for her mom while she fought cancer advised caregivers to quit always trying to put on a happy face when around your loved one who is sick. She said that it did both she and her mom a world of good to bring that shadow that was lurking in the room to light and to just openly discuss one another’s worries, fears, and pains. It is okay to cry together!

Too often, the job you do is thankless, I am afraid. So, let me just close by sending a heartfelt cyber hug and saying a big thanks to you for everything you do. You are so appreciated.

With love,

A cancer patient

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • anrean
    1 year ago

    I am now the patient who needs a caregiver. However, there was a time when I was the caregiver, and in all honesty I would prefer to be the patient. Being a caregiver is an extremely difficult task that eats at your energy, your time, your freedom and everything else, both physically and emotionally. Being in both situations, I cannot possibly thank my caregiver enough – and I make sure there is time for her to recharge and relax. My needs are many, but so are the caregivers! There has to be a balance.

  • Donna Fernandez moderator author
    1 year ago

    I so agree with you! I am the cancer patient, but i have also been (and often am) the caregiver for my husband who has had heart issues and diabetes. I, too, am not at all sure it isn’t easier to be the patient than the caregiver.

    I guess, in the end, it isn’t easy being either. I also try to let my husband, my primary caregiver, how much i appreciate him stepping up to the plate as caregiver when necessary.

    Thanks for adding your thoughts! Warm thoughts to you and your caregiver. Donna

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