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Cancer Spreading

  • By phosea0608

    My Mom, who is 81, was diagnosed with lung cancer in August. She had 10 treatments of radiation. We had a pet scan in early December. The docs said the cancer was non-aggressive and we should just enjoy time. But then Mom started getting weak. We did not realize until January but she was having fluid on her lungs and on her heart.. She had that drained. We had to wait 6 weeks after the surgery for a pet scan to check on the cancer. Now it seems to have exploded. We had the pet scan and then went to the stat clinic. We got told that the cancer has spread to the liver, more lymph nodes and more of the lung. Basically they said she was terminal to go home and call hospice. It just seemed so crazy that it just exploded. Has anyone else had this same thing? I was dumb founded

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  • By Jennifer M. Toth Moderator

    Dear phosea0608,

    I am so sorry to hear of your mom’s recent metastasis. Lung Cancer is so unpredictable and your mom is very lucky to have you as her support system during this journey. Has she gotten a 2nd opinion? And, more importantly, did they do genetic testing on her tumor? I know you have a lot going through your mind right now but I will list a link below for information on lung cancer treatment that will help you when speaking to her doctors. Please keep us up to date.

    https://lungcancer.net/treatment/

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  • By phosea0608

    Thank you!!!!!! I will ask about the genetic testing. They told me that since it was in the liver, lungs and lymph nodes it is too many places to radiate. Not sure Mom is up to getting a second opinion. I had a message into the oncologist to talk to him. When we got the news that the cancer had spread it was at the cancer clinic. The radiologist spoke to us but not the oncologist. The last thing he said in his office was we would see him at the clinic. The office called today but I missed it this afternoon so I have got to call them again. Hospice/Palliative care has been set up. I am going to my first support group tomorrow.

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    • By Margot Keymaster

      Hi phosea0608,

      Thank you for your reply! Support groups can be very helpful. We’re thinking of you and your mom wishing you the best. Please know that we and the community are here for you.

      Warmly,
      Margot, LungCancer.net Team

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  • By Annie777

    Dear phosea0608, they told me in January of 2016 I had lung cancer. I had my left lung removed and they said they got it all. Went through 16 weeks of chemo just for a little more insurance it wouldn’t come back! Had my next cat scan in march of 2017 and yes, so shocked it came back in a couple places. I was totally shocked! They came out with a immunotherapy called Keytruda and so far I have been doing well! There are so many new treatments getting FDA approved for lung cancer! I am so sorry to here about your mom not feeling well and very weak! That’s exactly how I felt when mine came back but didn’t know it was the cancer returning! Sending prayers to you and your mom!

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    • By Nicole Russell Moderator

      Thank you Annie777 for your story. It is definitely an exciting time in the Lung Cancer community to see all of the new treatments and trials coming out! Every patient is different and will respond to different treatments! It’s wonderful to hear stories like yours! We wish you the best! Please keep us updated on your journey! xoxo

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  • By TinaH

    Phosea0608, I to have lung cancer nsclc just diagnosed June 25th my anniversary. I to am doing keytruda. Just had first treatment. Would be awesome to talk and see how we both do. I wish you the best with it…positive thinking.

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    • By Christina Hegarty Moderator

      Hi TinaH,
      I’m sorry to hear about your recent diagnosis. Thank you for sharing with us here! I hope your treatment works well for you! Please keep us updated with how you’re doing if you’d like. We’re thinking of you!
      Best,
      Christina, LungCancer.net Team

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    • By Margot Keymaster

      Hi @pffurr

      Thank you for your comment – this is one option that some choose – we always recommend speaking with one’s doctor or healthcare team, getting a second opinion, and going over all options. For those struggling, this article can help with how to make medical decisions that work for you, the patient: https://lungcancer.net/living/making-decisions/ What matters most is that you feel comfortable with your care team and your treatment plan!

      Thinking of you,
      Margot, LungCancer.net Team Member

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  • By Donna Fernandez Moderator

    Hi @pffurr

    I think that everyone has to decide what is most important to them when looking at treatment options. My dad was diagnosed with lung cancer way back in the 1970s. He underwent chemo and radiation … and boy, did that chemo make him sick. I will never forget asking his doctor why in the world they kept giving him that poison when it wasn’t helping his prognosis of six months. The doctor told me, “Your dad refuses to consider not fighting all the way to the end.” If I had been my dad, I do not think I would have continued the chemotherapy, but I’m not 48 years old like he was either!

    Based on my dad’s experience with chemo, I said that if I was ever diagnosed with cancer, I would do surgery or I would do radiation, but I would never consider chemotherapy. But, when I was diagnosed with the exact same kind of cancer as my dad had had, I was told that surgery and radiation were not options. My only option was chemotherapy. And I said, “Sign me up.”

    With that said, I have also always said that quality of life is far more important to me than quantity. So, if the time comes that treatment makes me so sick that I have no hope for quality of life, I will likely choose that “missing” option … no treatment at all.

    Is that the option you have chosen? Or is it one you are considering? Margot gave you excellent advice and resources. I totally agree that the most important thing is for you and your loved ones to be comfortable with the healthcare decision(s) you make.

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