Why We Need to Tell Our Stories of Living with Lung CancerOften, when I tell a new acquaintance that I am living with lung cancer, I am met with disbelief. I am asked: YOU have lung cancer? Not enough of the...Bookmark for later
Must Know Information for Newly Diagnosed Lung Cancer PatientsWhen I was first diagnosed, understanding the terminology was like learning a foreign language. Bronchoscopy. Fine Needle Aspiration. Pulmonologist. PET scan. CAT scan. VATS. Mutation. ALK Positive. EGFR. RET. MET...Bookmark for later
Why We Need to Tell Our Stories of Living with Lung CancerOften, when I tell a new acquaintance that I am living with lung cancer, I am met with disbelief. I am asked: YOU have lung cancer? Not enough of the...Bookmark for later
Must Know Information for Newly Diagnosed Lung Cancer PatientsWhen I was first diagnosed, understanding the terminology was like learning a foreign language. Bronchoscopy. Fine Needle Aspiration. Pulmonologist. PET scan. CAT scan. VATS. Mutation. ALK Positive. EGFR. RET. MET...Bookmark for later
Why We Need to Tell Our Stories of Living with Lung CancerOften, when I tell a new acquaintance that I am living with lung cancer, I am met with disbelief. I am asked: YOU have lung cancer? Not enough of the...Bookmark for later
Must Know Information for Newly Diagnosed Lung Cancer PatientsWhen I was first diagnosed, understanding the terminology was like learning a foreign language. Bronchoscopy. Fine Needle Aspiration. Pulmonologist. PET scan. CAT scan. VATS. Mutation. ALK Positive. EGFR. RET. MET...Bookmark for later
Not all EGFR Mutations Are the SameMany of you understand the importance of having biomarker testing when you are diagnosed with lung cancer. This biomarker testing may indicate that you have an EGFR-positive mutation. But what...Bookmark for later
Accelerating Research for EGFR-Positive Lung CancerAs many of you know, I co-founded the patient group the EGFR Resisters in 2017 to improve outcomes for EGFR-positive lung cancer through support, education, and accelerating research. I’d like...Bookmark for later
Research Update from the EGFR ResistersAs many of you know, in mid-2017 I co-founded the EGFR Resisters, a grassroots, patient-driven organization dedicated exclusively to changing EGFR positive lung cancer into a manageable, chronic disease. Since...Bookmark for later
What Does EGFR+ Lung Cancer Mean?EGFR stands for epidermal growth factor receptor. EGFR is a protein that helps cells grow. However, a change (mutation) in the gene for EGFR can cause cells to grow too...Bookmark for later
What Caused My Lung Cancer?I was diagnosed with lung cancer in 2014. I did not have a lot of experience with lung cancer or even cancer in general. I had always heard of the...Bookmark for later
How Can Patients Drive Research?If someone had told me when I was first diagnosed back in 2013 that I would be helping to drive lung cancer research, I would not have believed them. But,...Bookmark for later
Joy Is A GiftIs joy still possible even with a lung cancer diagnosis? Joy is always mistaken as happiness. They are not interchangeable. Joy is from within despite what is going on in...Bookmark for later
